Friday, May 1, 2015

Around Alamo: Students rally for cancer organization

By Caterina Mellinger Columnist

The Lazarex Cancer Foundation recently received $6,000 for cancer research thanks to some tenacious young students at Alamo School.

The kindergarten-through-fifth-grade students participated in a fundraiser to help the organization after hearing about Lazarex through local resident Jeff Dudum, who presented the idea of a fundraiser to the student council. Dudum focused on Alamo School because he had two boys attend there. He also told the students that he knows a family from the San Joaquin County town of Thornton who needed to travel 170 miles round-trip to San Francisco every month for cancer treatments for their young daughter, Nevaeh, and these treks back and forth were made possible with the help of the Lazarex Foundation.

After approving the idea of helping the organization, the school held an assembly to kick off fundraising efforts. The Lazarex Foundation surprised the student body by having part-time Alamo resident and San Francisco Giants pitcher Jeremy Affeldt talk to the students.

Affeldt told them that they were actually his heroes for wanting to raise money for this cause. During the assembly, students learned about Nevaeh and her family and the challenges they faced, which motivated them to do something to help. Thus a coin drive began.

Soon the enthusiastic students emptied their piggy banks, gathered loose change, and some even took on extra chores to fill fundraising boxes, eventually accumulating $6,226. Fourth-grader Joshua Leinenweaver was more than happy to help out.

"I felt really good about the program because we are helping someone in need who is just like us," he said.

The students formally presented the check to the president of Lazarex Cancer Foundation, Dana Dornsife, on April 14. Alamo School teacher Andrea Fettig said she was proud of how the students took on the fundraising challenge.

"Almost immediately we had the students' attention when they found out we were going to be helping a young, 7-year-old girl named Nevaeh and many Student Council members began sharing their own stories of family members, neighbors or friends who have been effected by cancer," said Fettig.

"Given the opportunity to help such a young girl really resonated with the students at Alamo School," said Fettig. "I am also especially proud to see the Student Council members really come together and show the school what positive leaders look like."

Dudum said he also was proud of how the students rallied and was impressed by their enthusiasm. "Observing the children's faces as they watched the video of Nevaeh was truly a memorable moment. They really wanted to make a difference and help," he said. "Students around town and at sporting events came up to me and told me how much money they had raised to help Nevaeh. Priceless life lessons, for sure."

Alamo School Principal Stanley Hitomi echoed those same sentiments. "The experience was an opportunity for our students to learn about the community and our school. It's a skill to care about others and to find a way to take action to make those ideas come true," said Hitomi.

The young philanthropists are looking forward to meeting Nevaeh sometime soon, and their fundraising efforts will continue online at www.crowdrise.com/alamoelementary.

The Lazarex Cancer Foundation aims to improve the outcome of cancer care by giving hope and dignity to patients and the medically underserved by providing assistance with costs for FDA clinical trial participation, identification of clinical trial options, community outreach and education. For more information, go to http://www.lazarex.org. This just goes to show that communities can come together to help those in need and coins really do add up.

Thursday, April 2, 2015

Metairie grandfather riding bike across country for cancer research

By Earl Hodges
Riding a bicycle 75 miles a day cross country through 18 states for more than three months and covering 7,000 miles may sound like a daunting task for a 57-year-old Metairie grandfather.
For Eric McIntyre, though, the challenge is something he feels he has to do.
"The idea came to me one night while lying in bed, and it wouldn't go away," McIntyre said.
McIntyre's wife, Liz, was diagnosed with pancreatic cancer in 2012. And since then she has been enrolled in a clinical trial at the National Institute of Health in Washington, D.C.  McIntyre's cross-country adventure, which he is calling the Pancreatic Cancer Victory Tour, will raise money for the Lazarex Cancer Foundation which has its headquarters in Danville, Calif.  The Lazarex Cancer Foundation covers the cost for patients and a companion to travel to various cities where they can participate in clinical trials.
McIntyre will leave New Orleans April 6 and travel through 18 states including Arkansas, Idaho, California, Wisconsin and Washington before returning to New Orleans July 25.  He will be accompanied by a support vehicle, and Liz McIntyre will travel in the support vehicle when possible.
"This is something God placed on my heart," said McIntyre, who  has worked with State Farm Insurance Companies for 36 years.  "The bicycle tour is a way for me to sacrifice as much as I can for Liz.  And it's also a  way for me to show the depths of my love and support for her."
  Even though McIntyre has run a couple of marathons, he said he doesn't consider himself an endurance athlete.  To prepare for the arduous task of riding a bicycle 7,000 miles in three months McIntyre has been training by riding his bicycle 200 miles each week while still working full time with State Farm.
  McIntyre has also established the Pancreatic Cancer Victory Foundation, a 501 (c) 3 nonprofit.
  "We established the foundation to spread hope among those diagnosed with pancreatic cancer and to focus attention on effective clinical trials," McIntyre said.  "Liz and I agree that this is about so much more than our personal journey, and we sincerely hope it inspires others to do a little more and fight a  little harder."
  When McIntyre informed Liz of his plan to ride his bicycle  cross country, she said she had mixed feelings.
  "I think it is both wonderful and  crazy," Liz said.  "God has been with us through so many journeys, and I'm praying that God will be with Eric while he does this.  This will be another remarkable chapter in our lives."
  "We want to raise awareness to what kind of help is available to people with pancreatic cancer and also what is going on in the world  of pancreatic cancer," Eric McIntyre said.
  Dana Dornsife is the founder and president of the Lazarex Cancer Foundation.
  "What Eric and Liz are doing is absolutely extraordinary, especially at this point in their lives," Dornsife said.  "Cancer affects people in different ways.  Some people don't want to do anything while others  go through the motions of doing something.  And then there are those who step forward to make sure the suffering of their loved one is not in vain.  And that is what Eric and Liz are doing.  They are not going to suffer in silence.  They want to bring attention to this problem so others will be helped."
  All of the proceeds from McIntyre's  cross country bicycle tour will benefit the Lazarex Cancer Foundation.  McIntyre has set up a donation page linked to lazarex.org as well as the Pancreatic Cancer Victory Foundation Facebook page for those who want to follow him.
Metairie Music Club
The Metairie Music Club will celebrate its 50th anniversary March 21 at the home of one of its members.  The hours are 6:30 to 9:30 p.m.  Carolyn Nelson, president of the National Federation of Music Clubs and  Ken Nelson, president of the Louisiana Federation of Music Clubs will be on hand for the celebration.
Angela Marino Corona, who made her debut with the Metropolitan Opera in New York City in 2010 will perform at the event. Corona is a former student of one of the members of the Metairie Music Club.
"The purpose of the Metairie Music Club is to promote music in the community," said Mary Monsted, program chair for the club.  "To be a member of the club you don't have to be a music teacher or vocalist.  Instead, you just have to  believe that music is good for the community."
The Metairie Music Club has a membership of 63.  The club meets the third Wednesday of each month.  For information, visit www.metairiemusicclub.org.
St. Philip Neri
The St. Philip Neri Church and School Men's Club will hold its seventh annual crawfish boil March 21 beginning at 3 p.m.  Tickets are $25 at the gate for adults 16 and older.  Tickets can be purchased in advance for $20.  St. Philip Neri  is located at 6500 Kawanee Ave., Metairie. For more information, call 504.887.5600 or email Chad Terminie at SPNCrawfishCookoff@cox.net.
Earl Hodges writes about people and events in the heart of Metairie.  He can be contacted at earlhodges@msn.com.

Wednesday, December 24, 2014

Very Important Patient (VIP): Daiquan


Daiquan lives with his family in Indiana. He was only 23 when he was diagnosed with a rare cancer called Squamous Cell Carcinoma of the Nasopharynx, stage IV. He entered a clinical trial in March 2013, it was his only treatment option. In November 2014 he received the news that is cancer free!  

"I'm truly blessed to be able to say I'm CANCER FREE!!!!! I have to give thanks to USDC Cancer Center and everyone there that had faith. I must give thanks to the Lazarex Cancer Foundation as there's no way I would have made it without their help. To everyone that donates to their program - Thank You so very much and may God bless all of you! I pray that everyone has very safe and Happy Holidays!!!
Daiquan

The Best Gift Ever

 
Dear Friends,
It's no secret that in the midst of all the holiday hustle, the spirit of goodwill can seem hard to find. We get so caught up in our pre-holiday activities that we don't notice the goodness and kindness that is happening around us. I am happy to say that at Lazarex we experience acts of goodwill everyday through our sponsors, donors, volunteers, fundraising participants and the many letters of gratitude that we receive from patients and their family members.  
    
Your support of Lazarex Cancer Foundation has given hope and life to so many. Thanks to you, over 900 Lazarex-supported patients have participated in clinical trials that have led to FDA approval of more than a half-dozen cancer fighting drugs!  Your gift not only helps cancer patients in need now, it is reaching their families and loved ones, as well as future generations. 
 
Here is one example of your gifts in action: In November, Daiquan, a Lazarex VIP (Very Important Patient), got the news that he is cancer free thanks to the clinical trial treatment he receives!

With your support we can continue to help end stage cancer patients engaged in a fight for life. Please consider a contribution to Lazarex when making your year-end donations.  

As you celebrate this holiday season, may you and your loved ones receive the gifts of connection, grace and healing. May the spirit of goodwill prevail and gladden your heart.   
 
Sincerely,
Dana Dornsife
President,
Lazarex Cancer Foundation
www.lazarex.org

Tuesday, December 16, 2014

They walked, they ran, they gobbled their way to the finish line in the 2014 Thanksgiving Turkey Run

They walked, they ran, they gobbled their way to the finish line in the 2014 Thanksgiving Turkey Run. This Thanksgiving was Lazarex Cancer Foundation’s first year as a benefiting and participating charity in the Forma Gym 22nd Annual Turkey Trot in Walnut Creek, CA.

This Thanksgiving was Lazarex Cancer Foundation’s first year as a benefiting and participating charity in the Forma Gym 22nd Annual Turkey Trot in Walnut Creek, CA.

We were the sponsor for the Kids Fun Run’s. It was a great morning to spend with a large community of friends and families for the benefit of local nonprofits. It was a great way to kick off a day of celebration and gratitude.

The event had over 7,000 registered runners this year! It was largest festival venue by far. In 2015 there will be brand new courses in all events to accommodate the growing number of participants.

Look for us next year – we’ll be there!

Tuesday, July 29, 2014

Breaking down barriers to health care

Mass. General’s Dr. Karen Winkfield says that to improve access to health care and clinical trials, the solution has to be sustainable.
When Dr. Karen Winkfield leaves Massachusetts General Hospital to discuss health issues at Boston-area churches and clinics, she refers to her message as the “triple A:” awareness, advocacy, and ambassadorship. Read more

Tuesday, May 6, 2014

The Next Best Thing

The Next Best Thing
by Maida Broudo
One woman’s life changing quest to honor the memory of her father brings hope and inspiration to others. 
How can anyone “top” running 52 marathons in the span of 52 weeks to raise money and awareness for pancreatic cancer? Julie Weiss, 44, also known as the Marathon Goddess, has figured it out.
Ms. Weiss has a “flower child” like quality and a contagious spirit. When she smiles, it comes from her toes-literally. Perhaps that is why Lupe Romero-De La Cruz, 52, and a pancreatic cancer patient, ran the last mile of the 52nd marathon with Julie, even though she has just had surgery three months earlier. Ms. Romero-De La Cruz had been given 6 months to live. Through Julie’s inspiration and dedication, De La Cruz trained for and completed the Los Angeles Marathon on March 9th of this year.
In 2012, Ms. Weiss decided to run 52 marathons in 52 weeks in memory of her father, Maurice Weiss who died just one month after being diagnosed with pancreatic cancer. “It was like a death sentence, “ said Ms. Weiss. “I just had to do something to help.”
Helping is exactly what Julie is doing. Her marathon endeavors provide significant impact for both the Maurice Weiss Pancreatic Cancer Fund, and the Lazarex Cancer Foundation, with whom she is now is in partnership. As an ambassador for Lazarex’s “Team for Life” endurance division twenty percent of the funds raised by Ms. Weiss will be allocated to help pancreatic cancer patients have access to breakthrough treatments through FDA clinical trials with the rest going to the foundation’s broader mission.
Ironically, the Founder and President of Lazarex Cancer Foundation, Dana Dornsife, lost her brother in law, Mike Miller, then 46 years old, to pancreatic cancer. This spurred her to find a way to help others facing advanced cancer and searching for some sort of hope when they have been told there are no other options. As of 2013, the foundation has raised over 5 million dollars and provided 312 patients in 43 states and 6 countries, with financial assistance, making it possible for them to participate in clinical trials.
Pancreatic cancer is the 4th leading cause of cancer related death, most patients die within 2 years of their diagnosis. Despite this grim statistic, it is the most under funded of all cancer research. To date, Ms. Weiss has raised nearly $250,000, and is not stopping until she reaches $1 million.
Though the 52 marathons are behind her, Ms. Weiss continues to run and raise funds. Just this year alone she ran the LA Marathon and will run the Boston Marathon, the Big Sur International Marathon, the San Francisco Marathon and the TCS New York City Marathon as a member of Team for Life for the Lazarex Cancer Foundation.
For Ms. Weiss, the “next big thing” is seeing 2 pancreatic survivors winning their battle and running their own half marathons to prove it. Roberta Luna, 56 and an 11-year pancreatic cancer survivor, just competed a half-marathon. Ms. De la Cruz, as already mentioned, completed a full marathon just this past March. “These women have hearts of gold, and are full of determination, life and love,” said Ms. Weiss. “That is really what it’s all about!”
Pre-Race Screening of Spirit of the Marathon II, April 26, Monterey, CA
During the Big Sur International Race weekend Ms. Weiss will be a host/guest at a pre-race screening of the Spirit of the Marathon II film in which she was featured as one of seven runners at the Rome Marathon. This was the beginning of her quest to run one marathon a week for a year to honor the memory of her father. Proceeds benefit the Maurice Weiss Pancreatic Cancer Fund.  For information and tickets go to www.Lazarex.org.
Learn more about Team for Life at www.teamforlifelcf.org and Julie Weiss, Marathon Goddess, at www.marathongoddess.com.
About the author:
Maida Broudo has worked with cancer patients since she was 19, at the Massachusetts General Hospital, the Dana Farber Cancer Institute, and the National Cancer Institute, where clinical trials were de rigeur. She spent much of her career with patients-mostly in delivering Radiation Therapy, but also as a "navigator" helping them find the best team for their diagnosis.
As a marathon runner, who has run 10 Boston Marathons to raise money for cancer research, Maida found an instant love for the Lazarex Cancer Foundation when introduced by her aunt and uncle. She felt it a match of her own heart and could not look away.
Maida is currently a health journalist, consultant, and yoga teacher. She also teaches at Harvard Medical School and tutors nursing and allied health professionals. It is her very deep pleasure to be involved with Lazarex, and looks forward to making a difference for cancer patients.